ME Support and Treatment

ME Support and Treatment

LOCAL SUPPORT GROUPS:

Oxfordshire ME Group for Action (OMEGA)
4 Bursill Close
Headington
Oxford
OX3 8EW
Email: ltrl3@tiscali.co.uk
http://www.oxnet.org.uk/OMEGA

Wantage and Grove ME/CFS Support Group
Annie Kingsbury
Tel: 01235 763813
Email: annie.kingsbury@talktalk.net


NATIONAL SUPPORT GROUPS:

The ME Association (MEA)
7 Apollo Office Court
Radclive Road, Gawcott
Buckinghamshire
MK18 4DF
Tel: 01280 818964
http://www.meassociation.org.uk/
The ME Connect help line is 0844 5765326, and open every day of the week between 10am till 12 noon, 2pm till 4pm and 7pm till 9pm.


Action for ME (AfME)
Third Floor
Canningford House
38 Victoria Street
Bristol
BS1 6BY
Tel: 0845 123 2380
http://www.afme.org.uk and for young people http://www.a4me.org.uk.
Telephone support service: 0845 123 2314 is open to all from 11am till 1pm, Monday to Friday.

Action for ME now has a welfare rights helpline: 0845 1228648.

CHILDREN AND YOUNG PEOPLE:

OMEGA is currently campaigning for better services for children and young people. For further information contact ltrl3@tiscali.co.uk Poster available -please click to view

Tymes Trust (The Young ME Sufferer)
PO Box 4347
Stock
Ingatestone
CM4 9TE
Tel: 01245 401080
http://www.youngactiononline.com
http://www.tymestrust.org
Advice Line on 0845 003 9002 available 11am till 1pm and 5pm till 7pm weekdays.
   
AYME (The Association of Young People with ME)
10 Vermont Place
Tongwell
Milton Keynes
MK15 8JA
http://www.ayme.org.uk

(AYME’s confidential local rate help line, 08451 232389: Monday to Friday, 10am till 2pm or email: info@ayme.org.uk.)

Link Associates An AYME associated organisation, members consisting of parents, professionals, and older AYMErs: http://www.aymelink.org.uk.


THE SEVERELY ILL:

25% ME Group
This group was set up to offer support services to those severely affected by ME, and their carers. Provides a wide range of services to people affected by ME, most of whom are housebound and/ or bed-bound.
http://www.25megroup.org/ or Telephone: 01292 318611



ME Connect
The helpline can give advice and information, and is available on 0870 444 1836. They are open every day of the year from 10am to noon, 2-4pm and 7-9pm. Online advice is also available at www.meassociation.org.uk


CARERS:
   
CFS-Care
This is an email support group for those caring for people with Chronic Fatigue Syndrome, ME, and associated illnesses. All caregivers need support, and this list enables them to share their unique problems with others in the same boat.
http://health.groups.yahoo.com/group/CFS-Care/



NHS SUPPORT AND TREATMENT:

OMEGA demonstration against cuts in NHS services

GPs will generally make a diagnosis, although they will sometimes request a specialist opinion.They can refer to:

• Oxfordshire Community CFS/ ME Team (OCCMET)- particularly for those who require home visits. At present only for adults and young people over 14 years old. OMEGA is currently campaigning for this to be extended to treat all age ranges. If your GP is reluctant to refer you, you can get in contact with the team directly, and the OCCMET specialist GP will be able to discuss and explain to your GP.
• Oxfordshire Community CFS/ ME Team (OCCMET)
  Orchard Health Centre, 5A Cope Road, Banbury, Oxon, OX16 2EZ
  email: occmet@oxfordshirepct.nhs.uk or Tel: 01295 819191.
  http://www.oxfordshirepct.nhs.uk/local-services/community-services/occmet
• Clinics at the John Radcliffe Hospital for confirmation of diagnosis and for general management advice. They can refer on to OCCMET (details above), or to other options available for those able to manage attending hospital appointments regularly (eg: Cognitive Behavioural Therapy and Mindfulness Groups).
• Other consultants depending on your particular symptoms

COMPLEMENTARY MEDICINE:

Some people find complementary medicine helpful, particularly with certain symptoms, while others may find no improvement. Some of us have tried various treatments including homeopathy, acupuncture, herbalism, chiropractic and osteopathy. It is always worth finding a reputable practitioner, and finding out the cost and likely time for treatment.

Disclaimer
We cannot recommend specific doctors or treatments, whether conventional or complementary medicine. However, you may find it helpful to discuss potential treatments with other members, either at our meetings or by phone.

 

 

Links to other OMEGA pages within this site:

OMEGA
Useful Publications
Join OMEGA
Forthcoming Events
ME Support & Treatment
What is ME?
Practical and Financial Support
OMEGA Competition

 

 

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